For those who’ve been reading for a while and remember him, bully for you. For those who haven’t met him, I refer to him as Nephew N and he is now 19 months old. He was born with Radial Renal Syndrome. It’s genetic and it can affect the “sufferer’s” radius (the big bone in the lower arm), thumbs, heart, ears, kidneys… or all of the above! His outer ears have been affected- but not drastically, he is very far sighted due to water on the brain, which is now relieved with a shunt implanted before he was one. His hands work fine- but his arms are short and he has no thumbs. His shoulders are also differently shaped. He is walking and he has started talking- he is very clever and LOVES books, and he uses his feet when his hands can’t reach! More later…
There Is Never An Excuse
One in three is not a statistic - one in three is a crying shame.