Never one to do things in small measures, is my knucklehead.
For a few weeks he had complained that his fingers were numb, and it quickly spread up his arm all the way to his neck and the side of his face.
We went to our usual doc, and she quickly referred us to a Neurologist. Thursday we saw the Neurologist, and she examined him and found he had lost feeling in his arm and chest, as low as T4. She was concerned so she sent us to book an MRI.
Friday morning he spent a couple of hours in the MRI, and the Neurologist phoned us a few hours later and said it was what she had suspected and she was going to try and get hold of a Neurolosurgeon. We went back on Monday morning for a quick chat with her so she could explain what the MRI showed.
The knucklehead has Chiari 1 Malformation and Syringomyelia.
In the simplest terms, it means that the base of his brain protrudes from his skull, putting pressure on the brain and spine.
He was born this way.
Some people can live with Chiari 1 and never need treatment – the complication for the knucklehead was the formation of a Syrinx inside his spinal column, which extends from the base of his brain to T8. This is a fluid filled cyst caused by the Chiari, and it has been growing in his spinal column for years. It is this cyst that is causing the loss of feeling.
We saw a Neurosurgeon on Tuesday, and he has booked the knucklehead for surgery on Friday afternoon. Its called a Decompression, and this will relieve the pressure on his brain and spine, and the Syrinx should then be reabsorbed over time. This takes months, and its different for everyone.
The important thing is stopping the progression of the nerve damage, and hoping for no further complications.
Its fucking scary. I am battling to keep my brain from spinning out of control because I have been reading up on it. My darling Glugster is my rock, and keeps me sane.
My precious knucklehead is like me. We tend to clam up and want to hide away when we’re dealing with something big and scary.
I am terrified. We are terrified.